Wednesday, June 3, 2026

Coming through dark days.

 I am finally coming out of one of the worst years mentally in my life. Depression and anxiety are no joke. I have had my fair share of down days or blah days, but when it turns from days into weeks into months, that is scary. And, when you go from a somewhat fearless, independent person to one that's fearful and dependent, it raises some red flags. 

I was so unlike myself for a really long time. I wasn't smiling much, laughing much, didn't want to talk, I felt so disconnected. I was borderline agorophobic due to my anxiety. I was afraid to drive, especially if it was somewhere unfamiliar. My thoughts were obsessing on my fears making them worse. I wanted Mike glued to my hip bc he was my comfort and I was terrified something bad would happen to him. I was overly worried when anyone I loved went out somewhere especially if they were traveling. I was waking up with horrible images and fears to the point that sometimes it made me physically shake. I told Mike about that and ever since then he has woke up a little earlier every morning just to snuggle up behind me, hold me close and gently rub my back and arms to help my mind settle down. It has seriously helped me not start the day on high alert or extremely down. 

Some days were incredibly low which put my mind and thoughts in a very dark place. I was thinking of my future and it seemed very bleak. Nothing I did or knew how to do seemed appealing anymore. I didn't want to craft or sew. My body isn't in shape to stand on my feet or walk for any length of time. My memory is crap so learning anything new seemed out of reach. Plus my added anxiety had me afraid to even get out into the world. If that wasn't enough, my kids are grown so my role as a mom, all I've done or known for 20+ years has changed. They don't need me anymore. That's what I was telling myself. I felt completely worthless. I honestly thought, on many occasions, what do I have to live for? In my eyes, I was just existing. Day by day, I'd wake up, tired, no motivation or desire to do anything productive, I'd overthink about whatever I was obsessing on for the day and then look forward to going back to bed at the end of the day. This was my life for quite awhile. Sure, I'd put on a happy face when I needed to, but inside I was a mess. 

I knew something wasn't right, but I couldn't figure out what was going on. All I knew was that I didn't feel like myself or act like myself at all. I was very reclusive, antisocial and NOTHING brought me joy. And, let me tell you, when your mind isn't right, negative and irrational thoughts begin to enter and poison everything. That's exactly what was happening. I was stuck in a self loathing loop. My confidence was completely shattered. I didn't understand how anyone would want to be around me anymore. I was afraid that this was my new normal. I was miserable. 

I knew I needed to reach out and address this. Luckily, that's not hard for me since I'm a naturally open person. So, I began sharing my concerns and thoughts with my family and my doctor. And, I started seeing a therapist. 

My first thought was perimenopause because I'm that age and my cycles have been very irregular. I reached out to a hormone specialist and she got bloodwork to check out my levels which showed that they were off a little. So she put me on progesterone, testosterone and dhea. I can't take estrogen bc I'm on blood thinners. My biggest complaint was fatigue and motivation at that point. I took those for several months and didn't notice anything improving. The only thing I noticed was that I had NO interest in food at all. Which was very liberating on one hand bc that's what I've wished for my whole life. But on the other hand it was very strange. It was like my whole identity or love of life had been stripped away. My vice that provided comfort and joy was gone. Food was my everything. On the plus side though, I dropped quite a bit of weight in a short amount of time, so that was rewarding. But, during that time I also noticed my anxiety was getting worse. A lot worse. 

I tried to think of what else was going on that could cause this. I had recently started a job that was ideal for me. It was for a company owned and ran by friends, it was part time from home making a very decent wage. The downside for me was it caused me a lot of stress. To the point that I felt on edge all the time. I had to answer calls coming in about people having problems with their equipment, I'd try to troubleshoot as best as possible, and then schedule a service call if needed. Sounds relatively easy right? Well...for my perfectionist, impatient and people pleasing brain it was very challenging. Problem was, my memory sucks, so learning the product wasn't happening as quickly as I wanted, which made troubleshooting unproductive most of the time. And, people got aggravated with having to wait for a service call. So, in my mind I was letting people down all the time and after awhile that affects your mood. I'm not the best business person bc I want to make everyone happy and a lot of times you just can't.  Anyway, this was a seasonal job and the end of the season was approaching. So, I had to decide if the stress I was creating for myself was contributing to the progressing anxiety. I decided to focus on my mental health so I had to decline the offer to return the next year. 

While all of this was happening, I was waiting to talk to my doctor about changing up my depression/anxiety meds. I had just started the hormone medications and my job at about the same time. So I wanted to give those meds a chance to work and not change up anything else in the process. Once I decided to stop taking the hormone meds and I stopped working, I waited a little bit to see if that helped. It didn't help. By this point, I had been dealing with the decline of my mental health for over six months. It was time to address the depression/anxiety meds next. 

Thankfully, I have an incredible primary care doctor who has been with me through everything I've dealt with over the last 10 years or so. So he knows me very well. Besides the stressful job and perimenopause, there have also been other added stressors in my life over the last couple of years that could have contributed to my decline. My kids growing up is one...Colby going to Africa for 2 years and my youngest graduating high school. It's hard to imagine my world without them in it daily. It's really sad. We also had a family member living with us for a year and a half due to health problems. Because of this, I was unable to go to my craft area if I needed an outlet. That was a difficult time for many reasons. Anyway... So, I compiled all my triggers and went to see Doc and laid it all out for him. I explained what I have tried to do already to help myself, but nothing has worked. He listened. We talked. And, he took me off a med I had been on for years and started me on a new one. Gradually. I didn't even notice a change coming off my old one, which indicates it wasn't working so well. Over the next few months, he monitored me and I checked in monthly. He increased the dose a few times and I finally started feeling improvements. What a relief! During one of our discussions, I had said something that got him concerned about ADHD. He said that symptoms for that and anxiety overlap, so he had me take a test. Whelp...I have ADHD. I am honestly not surprised.  I've wondered about that for a really long time. Now I'm on a new med for that as well, which has also been bumped up a few times. I THINK...I am FINALLY to a point that I am about as normal as I can be. I'm still going through perimenopause and I'm still trying to find my new purpose now that the kids are grown. But...being on the right meds keeps me out of the dark space. 

Progression... Some of my anxieties are still there, just much less severe. I'm able to drive more places without so much worry. I have been pushing myself to do so. Getting out of the house is easier. My antisocial tendencies are still there, but I think that comes with age. Plus, my life is pretty boring so I don't really have much to say. My mood is much better and I feel happier. One big thing that I forced myself to do was going back to school. I initially did it just to get out of the house and challenge myself, but it was so much more. It helped me gain some confidence back and helped me envision a future for myself. That was probably the most damaging to my whole spiral was feeling worthless and hopeless. I still have some work to do, but I'm finally on a good path. It's something that I will have to keep an eye on and make adjustments when necessary though. I am so thankful for my amazing husband for being my rock, shoulder and never giving up on me. I have an incredible support system all around that has been there for me through this. I am so blessed. 

Wednesday, August 14, 2024

Update and Fear

Long time no see... or read. ๐Ÿ˜Š It's been roughly a year and a half since my last post. Crazy how time flies. 

You may want to reread my last post to get up to date on all things Jill. 

Here's a brief look into my health as of right now. I am currently taking a shit load of pills for a shit load of problems. Let's see...I have Lupus, Fibromyalgia, Diabetes, Lipedema, Hypothyroidism, high cholesterol, Spondylolisthesis, Osteoarthritis, Sleep Apnea...I'm sure there's more. ๐Ÿคท‍♀️ Plus I am still fighting with Cushing's Syndrome only because I am taking a dose higher than needed of Hydrocortisone, which is a hormone replacement for Cortisol. My body is not responding well when I try to wean off. So...I am taking it really slow. In the meantime,  my body still has too much Cortisol which puts extra stress on my body internally. On a positive note...my blood sugar numbers are GREAT! Woohoo!! 

I think the biggest problem I have right now is mobility. My knees are crap and my legs are weighed down because of the Lipedema (find my blog post about that one ๐Ÿ™„). So, it is a struggle to do anything requiring walking or standing. My legs scream at me with just a little bit of walking. It's VERY frustrating! And it limits me SO much.

Enough about that stuff. Now...what's going on with my life that isn't health related.... ๐Ÿค” 

My kids... 

Colby is on a church mission for 2 years (1 year already served) in Tanzania, Africa. Yes. AFRICA. And. AND! He had to learn Swahili!  Say whaat??๐Ÿ˜ณ Honestly though, I think it suits his personality very well. The first few months were hell for him, but after that, his Swahili got better and he got a new companion which helped tremendously! So far, he's continued to have good companions. Let's pray he continues to. ๐Ÿ™๐Ÿคž

Brett is going to the University of Central Missouri working towards a Computer Science degree.  He's a computer nerd, just like his dad. Thank the Lord for that one! ๐Ÿ™Œ In addition to that, he works part time at Papa Murphy's, and he has went down an entrepreneurial path of buying video games, figures and consoles on Ebay and FB Marketplace to turn around and resell them to make a profit. He's doing really well too! 

Sydney just graduated high school with lots of awards and a GPA of over 4.0. She currently has been looking for a job, but hasn't found one yet. She's  applied to a lot of places, but just hasn't had any luck. Hopefully she'll find something soon. ๐Ÿคž She starts college at the Community College next week, taking some "boring" classes in addition to a couple fun ones. Her passion is in theatre, backstage management mainly, so she has her eyes set on that right now. Althoooough... after watching the movie "Twisters", she's thinking storm chasing sounds pretty cool. ๐Ÿ˜ณ Uhhhh. Please no. 

Now back to me... lol

Right now I'm feeling a little lost because my Stay at Home Mom job has completely changed since all my children are now out of high school and my youngest will be an ADULT next month. I can't believe I'm THAT old!! I'm currently taking a Veterinary Assistant course through the Community College Continuing Education program.  And let me just tell you how under used my brain has been over the last 20+ years. My memory and ability to retain information is practically non existent.  Which is incredibly frustrating!! ๐Ÿ˜ค I hope when it's over I will have learned at least a little something.  ๐Ÿคท‍♀️

The thing is, at this time in my life, this transition period, is extremely scary for me. I have so much fear to go out into the real world again. I have looked for jobs within the Veterinary field and talk myself out of applying because of all the limitations I have physically PLUS my ability to learn new things in a timely matter, is questionable. Last year, I worked at the front desk of an animal shelter for about 3 hours, and then quit because I completely panicked at how much computer stuff I had to learn. 

I never used to be this afraid of my abilities. My body is crap, my brain is crap...what do I have to offer any employer at this point. Those are the thoughts going through my head. I feel so unproductive right now. My kids are grown. I don't have a job. I'm not enjoying sewing right now so my business is on hold at the moment. Mike has been such a huge support though. He NEVER makes me feel bad and always encourages me to do whatever it is that interests me at the time. Regardless of my lack of the ability to retain information,  I am enjoying this Vet Assistant course and will continue to work on that. In the meantime,  I am working on my body to get it back in shape, and taking this class will hopefully reboot my brain to be able to learn new things again. ๐Ÿ™๐Ÿ™๐Ÿ™ I WILL get myself back on track. I refuse to let fear hold me back. I just have to be compassionate with where I'm at right now. Do what I need to do to get myself back on track and get past this transition period. 



Tuesday, January 17, 2023

Is that it. ๐Ÿ˜

 It's been awhile...

The past year and a half has been very difficult and challenging, but also rewarding and encouraging in some ways. 

Let's recap, shall we. 

In June of 2021, I was diagnosed with Cushing's Syndrome.  This is a condition that's caused by the overproduction of Cortisol, the "stress hormone". Cortisol is naturally distributed in the body during stressful situations or when the body is fighting something internally...it's what they call "fight or flight". If the body has extra Cortisol being distributed, it can begin to damage many other organ functions within the body...all over. 

I had a tumor on my Adrenal gland that was noticed about 8 years ago. I went to a specialist that didn't seemed worried. I unfortunately trusted him. ๐Ÿ˜ก Fast forward to 2021...I started researching my health problems and different diagnoses over the recent years and made a connection that pointed to Cushing's.  I switched doctor's and after a bunch of tests, Cushing's was confirmed. I KNEW there was something underlying that was being missed. ๐Ÿค”

After looking back on my life and connecting the dots of all my health issues over the years, I have come to the conclusion that I have probably had Cushing's for over 20 years. TWENTY YEARS! ๐Ÿ˜ณMy body has been stuck in "fight or flight" causing all kinds of chaos and havoc within my body for 20 years. At least.  ๐Ÿฅบ 

So...next step. Adrenalectomy.  Take out the source that is throwing a party of Cortisol. "YOU GET CORTISOL! YOU GET CORTISOL!" (credit: Oprah) ๐Ÿ‘Š Every organ hit the payload of Cortisol. ๐Ÿ’ฐ๐Ÿ™„

The body has two adrenal glands, so my body will be fine with one. However...the other one has been sleeping on the job bc the "naughty" one is running the show. After surgery, it will be forced to wake up IF it still works. 

Unfortunately my body has been swimming in Cortisol for a REALLY long time, so...it DID NOT take kindly to getting it stripped away. 

Here's where I start my timeline for the last year and a half...roughly.  Get ready for the bumpy ride... ๐ŸŽข

Sept 29, 2021: Adrenalectomy. Removal of the adrenal gland.  Post surgery recovery: A lot of pain. A lot.  ๐Ÿ˜ซ

Less than a week later: Brett tests positive for Covid. He tries to fight it at home, but gets worse every day. Mike and Colby do everything possible to help him. (This period of time has created PTSD for Colby from seeing his twin in this condition). I was out of commission due to the surgery and Syd was quarantined for exposure from someone else. After several days, he was admitted into the hospital for 5 days. 

Mid October:  I test positive for Covid and get a 5 night stay in the hospital. Yippee. While still recovering from my surgery.  Lots of pain. Lots of STUPID I.V. nightmares. ๐Ÿ˜ค๐Ÿ˜ก๐Ÿคฌ

Fun fact๐Ÿ’ก: I got admitted into the SAME room that Brett stayed in. He came home and a couple days later I went in. AND...it was my FIRST ambulance ride. ☺️ Mark the calendar ✔️

During the next few months: Ready for this. *deep breath*  Several ER visits, my 2nd ambulance ride ✔️✔️, blood sugar drop to the 40's and again to the 60's on a different occasion, a couple more hospital stays, uncontrollable body spasms, tested positive for Mono, tested positive for Lupus and Fibromyalgia, a pinched nerve that was excruciating during every body spasm (MULTIPLE times a day), nervous breakdowns with uncontrollable crying, chronic diarrhea for several months, vomiting all the time, constant nausea....

I'm sure there's more, but... that's all I can remember.  There were many very DARK days. Mike wasn't sure I'd pull through. That's how bad I was. 

I had seen just about every specialist to figure out what was going on. I kept in constant contact with my Endocrinologist (Cushing's doctor) to keep him in the loop in case it was Cortisol withdrawal related. Yes, that is truly a thing. ๐Ÿ’ฏ I read that post surgery recovery is comparable to herion withdrawal. I'm not kidding. I've never taken herion, but my recovery was...no joke. He was certain though that I was on track with my hormone replacement dose. 

I finally went to the Neurologist to talk about the spasms.  Those spasms were #1 ๐Ÿ’ฏ the WORST part of the recovery. I dreaded waking up bc the mornings were the worst. All she said was that they were stress related. Really. ๐Ÿคจ

๐Ÿ’ก Light. Bulb. ๐Ÿ’ก

What did I JUST have ripped out of my body?! Uhhh...the STRESS hormone lollapalooza tsunami. That's right. Cortisol.  THE stress whisperer. Apparently my body is not coping with stress well. At all. 

I messaged my Endocrinologist and he was amazed bc spasms have never been a symptom after this kind of surgery. Yep. Leave it to me to be the exception. ๐Ÿ™„๐Ÿ˜ Anyway...he said to increase my dose from 40 to 60 or 80. So, of course I chose 80. Duh. LOAD ME UP. 

And wouldn't you know...a few days later I felt like a new person! It took HOW many months to figure this out?? I stayed on 80 for a bit, then tried 60, then back to 40. I found my sweet spot at 60. I am STILL on 60 bc of some of my OTHER diagnoses that are causing my body to require legit more Cortisol. 

Fast forward a bit. 

April-ish 2022: I'm feeling great! The best I have in YEARS! I start working out and seeing a Physical Therapist for some pool exercise.  This was helping me tremendously. I develop a good, trusting and open relationship with my PT. He helps me work out some tight muscles that are causing pain...which hurt like a Mother ๐Ÿคฌ, but it was necessary.  One day he decided to channel his inner Chiropractor (he is NOT licenced to do that) and adjust my middle back (it WAS very tight). He pushed down on my spine and it was THE most excruciating pain I have EVER felt. ๐Ÿคฌ๐Ÿคฌ๐Ÿคฌ๐Ÿคฌ๐Ÿคฌ Worse than ANY surgery recovery.  ๐Ÿ’ฏ๐Ÿ’ฏ

It took at least three weeks to get back into a position where I could move again without wincing. He caused Costochondritis, fancy word for: inflammation of the cartilage in between ALL my ribs. ALL my ribs. In addition to a Fibromyalgia flare up. 

So...that put me out of commission and off my workout schedule, and I have struggled since to get the energy I had before that happened. 

The next few months were pretty good.  I was getting back the motivation to do things and complete projects.  

Let me just say that again. COMPLETE projects. THAT is huge for me. *queue pat on the back* ๐Ÿ‘ 

October-ish 2022: Massive headaches, chronic knee pain and inflammed chronic foot pain...resulting in an MRI of my head and one of my foot. 

Foot: Sinus Tarsi Syndrome aka chronic inflammation of the point where my ankle and another bone meet on the top outside part of my foot. Constant burning pain and inability to move my foot in certain directions without pain. Also....Plantar Fasciitis, arthritis and a cyst...all on my right foot. I had to get custom orthotics to correct my step.  It still causes a lot of pain but it's slowly getting better. 

Knees: Very bad arthritis and the left knee is bone on bone at one point. I got a gel injection series in my left knee that is supposed to be better than a cortisone shot. Well....it wasn't. ๐Ÿ˜ก $450 later, my knee hurts WORSE!! P.I.S.S.E.D. That's what I was. Pissed.  So...I found a new doctor (I was thinking about it before this) and got a cortisone shot in each knee (MUCH better! ๐Ÿ‘Œ) and was told I need new knees. But...I have to lose more weight before I do that. Until then, my knees are tolerable with cortisone shots. 

Head: Migraines. Caused by anxiety and stress. MRI: shows hardening of some arteries due to high cholesterol and diabetes. Nothing much to really worry about, just keep those numbers in control to keep it from progressing.  My migraines only last for 15-30 minutes at a time and only occur for a short period of time and then they're gone for awhile. It's weird. 

December 2022: I had my blood retested to confirm that the Lupus and Fibromyalgia diagnosis wasn't due to my body being so jacked up. I honestly didn't think I had it, so I stopped taking the Lupus medication in November for about 6 weeks. I noticed though, after about a week of not taking it, my body hurt ALL over and I was really tired. But I still held out till my appointment.  I got the results back and the number that confirms the diagnosis doubled from what it was originally in January. So...I definitely have it. ๐Ÿ˜” Back on the meds and I'm feeling much better in the aching body sense. OH...but I was told that I'm borderline kidney dysfunction though. So...there's that. ๐Ÿคท‍♀️

January 2023: Blood in my urine. Yep. We're talking brown pee. It happened once one day and then again, several times, 2 days later. No UTI. So, now I'm going to see my Urologist. The same one who did the Adrenalectomy and has also been monitoring a cyst on my kidney.  ๐Ÿคฆ‍♀️ He might have to do a Cystoscopy to look into my bladder. NOT looking forward to that.  He'll have to stick a scope up in there and fill it with saline to get a good look at everything.  All I can say is...once that scope gets removed...he better be wearing a rain poncho bc that saline will be tsunami-ing all over him. ๐ŸŒŠ You're welcome for the visual. ๐Ÿ˜‰๐Ÿ˜‰

Also this month: I had a check up with my Endocrinologist. The goal after my Adrenalectomy was to eventually wean off the 60mg of Hydrocortisone, aka Cortisol replacement that I'm taking, to a dose that is natural for my body in order to force my other inactive adrenal gland to start functioning properly.  But...my Lupus in uncontrolled right now which means my body is full of inflammation. Everywhere. Because of this, my body needs the extra Cortisol, so weaning off right now sends me into a downward spiral. I DO NOT want that. The spasms start again and the anxiety skyrockets. 

He did,  however, put me on a new diabetic medication called Mounlago, which is known to produce great weight loss results. ๐Ÿคž๐Ÿคž

To sum it all up: I am still working on recovery from all the damage Cushing's did to my body. ALL the damage. Everywhere.  Lots of damage. ๐Ÿ˜Ÿ๐Ÿ˜ฃ 

I don't deal with stress well and my anxiety is a big issue right now. I have to remind myself to take it easy and not overcrowd my plate. I get physically ill when I'm overwhelmed and I just can't do that right now. I have to allow my body to heal and work on rebuilding what's been damaged. I have to focus on getting my Lupus under control, so my body doesn't have to fight so much inflammation.  

I feel like I'm on the other/positive side of things finally and I'm on the right track. I take it day by day and roll with the punches. I try to stay positive and be patient with myself and take care of me. ❤️❤️